Wednesday, April 24, 2013

STARTED WITH THE INTENT OF BEING AN ASSHOLE...ENDED UP CONTEMPLATIVE

     I've got myself reading comments on a post related to autism. I tell you, if you've ever needed help understanding what denial is and/or looked like, read a forum for parents of children with autism.

     Right away you're assaulted with corruptions of the English language: "My son is not autistic, he HAS autism..." said one mother who clearly doesn't understand that many nouns have adjectival forms and that the -ic suffix does in fact mean "having, showing, or affected by" among its several related definitions.
      Another mother put it this way, "I think a better way to say this is that you have autism. If you say you are autistic that means thats is [sic] all you are" - I find posts like this somewhat ironic as it seems parents with autistic kids make sure you know this fact, even if you didn't ask. It's like the old joke about "How can you tell if someone is a vegetarian? Don't worry, they'll tell you." And God forbid you're not 100% completely on their side of thinking. Oh, the hell that will rain down upon you. They're perfect little angels who, unlike typical children, need excessively costly care and limitless attention from one-on-one aides devoted to their "special needs", another term that bugs the shit out of me for being too vague and ultimately dishonest. These parents go way the fuck out of their way to delude themselves into thinking these kids can be just like typical kids; that all we need to do is understand they're just different. Different being a hell of a loaded word. Yes, autistics come with a range of misbehaviors. My Best Friend worked with them so I've got the stories ranging from ones who are otherwise alright except in certain circumstances - meaning they're fairly trainable - to ones which are so lost that they can't even speak at eight years old, still wear diapers, and have no clue whatsoever just how strong they are.

      As far as I can tell, there's no cure for autism and the cure, if one can be found, will likely be like those for cancer, a range of remedies. Or no cure will be found because a prenatal test will finally be developed to detect the gene or genes responsible for autism and their prevalence in the population, like that of Down Syndrome, will drop precipitously. I'm suspecting the latter will be what ultimately happens.
      More denial here: "I also agree with others who've pointed out that this is not an autistic child, but a child with autism. This is an important distinction in advocacy efforts to educate the public and educators that our children are not broken, not defective and not defined by their diagnosis." --- If they are not broken, defective, or otherwise defined by their diagnosis, then why all the advocacy? I feel like they want it both ways. They're not defective, but they need special-this and special-that. They're not defined by their diagnosis until the school refuses to treat them any different than a typical student in which case these children have special needs which must be addressed by the school system. Huh? That's like saying a blind person isn't defined by their diagnosis. Yeah, they pretty much are and compared to sighted people, their eyes/optic nerves are quite defective indeed, even broken. Yet analogizing this woman's sentences, she would likely claim that a person who's blind is no different from you and me but he needs special books printed in braille and seeing-eye dogs when out in public, but no different. Nope, not at all.

      They of course despise the adjective normal and will be quick to scold you for using the term because they feel this stigmatizes their autistic children as abnormal. They'll use the word "typical" or "regular" (and yes, the words will often appear enclosed within begrudging quotation marks) instead for describing children exhibiting expected behaviors not that I understand how the logical following that your autistic child is "atypical" or "irregular" is any less stigmatizing but whatever. "Some children's needs can't be met in a 'typical' classroom. That is why we have special education classes and teachers."

      Another common thread I take from these discussions are that these kids with autism are "not my (the parents') problem: they're your problem and you have to pay for it!" I find frequent appeals to government laws like IDEA (Individuals with Disabilities Education Act) and threats to sue in open court. Never mind that I have no idea where this money is supposed to come should the parents win their cases no matter how meritorious the filing.
      I also see many references to all children having a right to an education. Again, it's not my problem, it's yours. Yes, but what rarely goes addressed is what to do if they are uneducatable? One commenter wrote the following:
What's the answer? I love how people bitch about education, but there are no solutions offered. Serious questions: 1) Is it fair to put special needs kids in a school with other kids? 2) Is it right for a teacher to spend 90% of their time on 10% of the kids? 3) Would there be objection to segmenting schools to where kids were sent to teachers who are equipped to teach different levels of learning? 4) Autism comes in many forms. If a child is non-verbal, yet superior at electronic learning, and another autistic child lashes out (Aspergers), would you put them in the same class due to Autism?

He followed up in response to another commenter who said that we (teachers) have to try to reach them all...

I agree that you try to reach them all, but at what point do you realize you can't? Being a little selfish here, but why should my child be told to read the book while you spend your time with the children who need the special attention? If it truly is an equal education, why is it that kids who take time from the rest of the class consistently [are] not removed and better place in classes with teachers who are better equipped to teach special needs children? If it is the social aspect that we are trying to give these kids, isn't that what recess, lunch, electives are for?

     He was treated well though such comments can often lead to flame wars.

      I know there are no simple solutions to this problem that's not a problem until you decide it's not a problem because then it most assuredly is. Personally, I'm an advocate for euthanasia for anyone who cannot be made to independently and lawfully participate in society. It seems the only humane thing to do. Yeah, I know it's not their fault they turned out this way. I also really don't believe George wanted to kill Lenny. From a resources point of view, it seems so entirely wasteful. All this investment with zero potential for positive overall returns. For every successfully trained autistic who makes the covers of magazines and gets interviewed on television for the public to praise, how many spend their lives in institutions in abysmal conditions just because we can't bring ourselves to give them an injection of euthasol (assuming it works the same on humans)? What is the success rate of education and training of individuals with autism? Does it even approach that of high school graduation rates or are they marvels of wasteful inefficiency? What is the cost/benefit analysis? I know from a parental point of view, their child is of course perfectly precious but what do the numbers say? I suppose for my own curiosity's sake, what is the cost/benefit analysis of the average human? I might be unpleasantly surprised to know the results.

      I hate these entries because they never go anywhere...

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